Skip to Content
Skip to Navigation

Privacy notice. Independent Support: COVID-19 response survey. 

May 28, 2020

SDSS and Inspiring Scotland have come together for a joint project, as we want to demonstrate the vital role Independent Support Organisations have played throughout the COVID-19 crisis..

Legal basis for processing your Personal Data

While we are not intending to collect any personal data as survey respondents are already known to us (see SDSS Legitimate Interests) we may share your name and place of work with Inspiring Scotland and Health Improvement Scotland to fulfil ongoing data analysis and research processes. Any further personal data you may provide will not be shared (without your explicit permission.)

Location data such as IP address is collected to prevent duplication of entries but will be deleted at survey close.

Respondents can access, correct and withdraw their responses if they wish by contacting SDSS, details provided below, prior to report publication.

The legal grounds for us processing your Personal Data will typically be because

  • the processing is in our legitimate interest as a provider of SDS information and resources (for example, if you work in a related field such as social work or for an emerging SDS support service (See SDSS legitimate interests below)

In all instances we aim to hold only what data is needed to effectively operate our service to you and our stakeholders and we carry out audits and operate a Retention Policy to ensure all data is securely deleted if no longer required.

Data Processors used by SDSS


All data from this survey held by SDSS is contained in a custom Salesforce database which is utilised only by trained and authorised SDSS employees. Technical staff of contracted integrated applications such as Campaign Monitor and Form Titan listed below or Salesforce itself may access limited or administrational areas when required for troubleshooting SDSS utilises Salesforce to better manage and contain personal data, for example to ensure data is only held as long as is required. Salesforce has detailed Trust and Compliance documents available here.

Form Titan

The form we are asking you to complete as part of this project is powered by Form Titan. For more information, please see Form Titan’s compliance notice. Personal information collected by this form is held in our Salesforce database for processing by SDSS.

SDSS Legitimate Interests

The purpose of SDSS is to successfully embed the principles and practises of the Social Care (Self-directed Support)(Scotland) Act of 2013 and to promote Independent Living by supporting and championing Disabled Peoples Organisations. We have a legitimate interest in people and organisations who can further this purpose and those that need our support to increase opportunity and improve wellbeing for others.

Organisations of legitimate interest and the people who work for them

In seeking to inform and influence decision makers and people who work within social care, SDSS will use and keep publicly available information for the purpose of communication on our database. We also keep records of activity, affiliations and contact preferences to ensure we contact appropriately and maintain good working relationships. These contacts include those formerly from membership or lapsed membership organisations.

People of legitimate interest

Individuals who engage with SDSS are often professionals or influencers in social care or have complex issues to resolve in collaboration with our membership or other stakeholder organisations. In line with our Retention Policy, contact and activity data on these individuals is maintained for a period after campaign or case resolution for continuity, follow up or maintaining a case history to support future action.

How to contact us

If you want to request information about our privacy policy, make a subject access request or complaint you can telephone, email us or write to:

Data Protection Lead
Self Directed Support Scotland
Norton House
57 Albion Road

Edinburgh EH7 5EQ

Telephone 0131 475 2626